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Mayo Clinic Transgender Gender Diverse Community Partnership to Improve Gender Affirming Care Access and Outcomes

Overview

Información sobre este estudio

The purpose of this study is to create a patient-centered research partnership with a stakeholder advisory group (SAB) to adapt the Duke Transgender and Gender Diverse Individual Registry. The SAB will guide all phases of the proposed research to develop a framework for the first US multisite adult TGD prospective cohort. Patient registries are one of the most effective research tools for studying and understanding underrepresented populations and rare diseases. They support quality measurement, provide feedback to clinicians and institutions for quality improvement, facilitate clinical research, and enable evaluation of healthcare access and disparities.    

Elegibilidad para la participación

Los requisitos de elegibilidad de los participantes incluyen la edad, el sexo, el tipo y el estadio de la enfermedad, y los problemas de salud o tratamientos previos. Las pautas difieren de un estudio a otro e identifican quiénes pueden o no pueden participar. No hay garantía de que cada persona elegible que desee participar en un ensayo se inscribirá. Comunícate con el equipo del estudio para analizar la elegibilidad del estudio y la posible participación.

Inclusion Criteria:

  • All adult (age ≥ 18 years old) patients.
  • Are receiving or seeking medical care at the Duke Adult Gender Medicine clinic. Because the Duke Adult Gender Medicine clinic does not provide medical care to children; we will focus on recruitment of adults to provide initial data matched to their cohort. Since participation in the Research Registry does not involve a risk of physical harm, women of childbearing potential will not be queried as to pregnancy status or tested for pregnancy.

Exclusion Criteria:

  • Age < 18 years old.
  • Due to the complexity of state and federal requirements governing the participation of prisoners in research, prisoners-patients shall not be approached for participation in the Research Registry.

Sedes participantes de Mayo Clinic

Los estatus de los estudios cambian con frecuencia. Comunícate con el equipo del estudio para obtener la información más actualizada acerca de la posibilidad de participar.

Sede de Mayo Clinic Estatus Contacto

Jacksonville, Fla.

Investigador principal de Mayo Clinic

Alice Chang, M.D., M.S.

Abierto para la inscripción

Contact information:

Clinical Studies Unit

(904) 953-2255

More information

Publicaciones

Publications are currently not available

Otros temas en investigación

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CLS-20541357

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