Data Dictionary

The Mayo Clinic Study of Aging Data Dictionary provides an overview of the data collected in the study and the data collection schedule. Mayo Clinic Study of Aging data include:

  • Information provided by participants
  • Neurological and cognitive examination results
  • Brain imaging data and diagnoses

Contact the study for additional information about these data.

Data set name Information contained Collection schedule
Adverse Events Log Adverse events log Filled out at each visit as necessary
Beck Anxiety Inventory Beck Anxiety Inventory Collected at all visits
Beck Depression Inventory II Beck Depression Inventory II Collected at all visits
Blessed Memory Test Blessed Memory Test Collected at all visits
Blood Collection Blood Collection Collected at all visits
Brief Mayo Sleep Questionnaire — Informant Brief Mayo Sleep Questionnaire — Informant Form was for informant only until May 2015, when it was broken into 4 forms: BSQ_BEDPARTNER and EPWORTH_INF for informant; BSQ_SUBJ and EPWORTH_SUBJ for subject.
Brief Mayo Sleep Questionnaire — Subject Brief Mayo Sleep Questionnaire — Subject Form was for informant only until May 2015, when it was broken into 4 forms: BSQ_BEDPARTNER and EPWORTH_INF for informant; BSQ_SUBJ and EPWORTH_SUBJ for subject.
Brief Smell Identification Test Brief Smell Identification Test

Collected once at baseline visit

Started Oct. 2008 with follow up for 2004 cohort

Originally collected after participants turned 70, but since Nov. 2015, collected once for participants of all ages
Clinical Dementia Rating

Clinical dementia rating interview

Clinical dementia rating scoring

 Collected at all visits
Electronic Diagnostic Codes Rochester Epidemiology Program medical records Collected 2 times each year; patient-specific data updated at each visit
Epworth Sleepiness Scale — Informant Epworth Sleepiness Scale — Informant Form was for informant only until May 2015, when it was broken into 4 forms: BSQ_BEDPARTNER and EPWORTH_INF for informant; BSQ_SUBJ and EPWORTH_SUBJ for subject.
Epworth Sleepiness Scale — Subject Epworth Sleepiness Scale — Subject Form was for informant only until May 2015, when it was broken into 4 forms: BSQ_BEDPARTNER and EPWORTH_INF for informant; BSQ_SUBJ and EPWORTH_SUBJ for subject.
Everyday Cognition Scale — Informant Everyday Cognition Scale — Informant

Started Nov. 2010 at follow-up visits only

12 items only starting around May 2015
Everyday Cognition Scale — Subject Everyday Cognition Scale — Subject

Started Nov. 2010 at follow-up visits only

12 items only starting around May 2015
Family History Family History Collected at all visits
Food Frequency Questionnaire Food Frequency Questionnaire

Collected for 2004 cohort only, may have been after visit 1 or 2

Collected only for participants age 70+
Friedman-Mallampati Score Friedman-Mallampati Score

Collected at all visits

Started Jan. 2018
GAITRite-Zeno Walkway Gait from GAITRite; switched to ProtoKinetics Zeno Walkway in Sep 2018

GAITRite started Jul. 2007; collected at all visits

Around Sep. 2018, switched to ProtoKinetics Zeno Walkway
Hachinski Ischemic Score — Short Version Hachinski Ischemic Score — Short Version Collected at all visits
Informant Information Informant Information Collected at all visits
Lumbar Puncture Outcomes Lumbar puncture Outcomes Collected at all visits where lumbar puncture takes place
Mayo Clinic Study of Aging Historical Interview and Risk Factor Assessment — Short Form (Baseline) Mayo Clinic Study of Aging Historical Interview and Risk Factor Assessment — Short Form (Baseline)

Collected at baseline visit

Prior to 2012, collected only at visits 1-4
Mayo Clinic Study of Aging Historical Interview and Risk Factor Assessment — Short Form (Follow-Up) Mayo Clinic Study of Aging Historical Interview and Risk Factor Assessment — Short Form (Follow-Up) Collected at follow-up visits Prior to 2012, collected only at visits 1-4
Medications Medications Collected at all visits
Montreal Cognitive Assessment Montreal Cognitive Assessment

Started Nov. 2010 at follow-up visits only

Stopped May 2011, as the list of questions was interfering with other testing

Collected for participants age 70+
MRI and PET Imaging

Amyloid-PET imaging —global amyloid standard uptake value ratio

Vascular imaging — total white matter hyperintensities

Fluorodeoxyglucose-positron emission tomography (FDG- PET) imaging — Alzheimer's Disease Neuroimaging Initiative — meta regions of interest FDG standard uptake value ratio

MRI brain imaging — regional Freesurfer v5.3 data along with in-house total intracranial volume

 Collected at respective scans
Neurologic Exam and Modified Unified Parkinson's Disease Rating Scale (UPDRS)

Neurological exam and Modified UPDRS questions 1-23

Neurologic exam and Modified UPDRS questions 24+

 Collected at all visits
Neuropsychiatric Inventory Neuropsychiatric inventory questionnaire Collected at all visits
Nurse Abstractor Medical Record Review Medical record review by nurse abstractor

Conducted after participant is no longer actively volunteering in the study

Only participants age 70+ reviewed

Records re-reviewed every 5 years if participants hadn't died or developed dementia at time of previous review
Patient Information

Demographics

Pre-visit summary

Baseline participant information

Master tracking from ALZ studies

 Collected at baseline visit
Physical-Cognitive Activities Physical and cognitive activities (70+)

Collected once

Started Aug. 2006 with a follow up for 2004 cohort

Collected at baseline visit unless missed

Since around May 2015, new participants complete a section referring to their "past" according to their age; participants 30-49 years old don't fill out a past section.
Psychometric Summary Psychometric summary; domain Z-scores derived from neuropsychological battery Collected at all visits
Risk Factor Review Risk factor review by nurse abstractor Risk factor review done initially after study entry and rereviewed every 2-3 years while participants are actively volunteering in the study
Short Test of Mental Status Short Test of Mental Status Collected at all visits
Syndromic Cognitive Diagnosis Final consensus diagnosis (cognitively unimpaired, mild cognitive impairment or dementia) Collected at all visits
Telephone Instrument for Cognitive Status — Modified Telephone Instrument for Cognitive Status — Modified Collected at phone follow-up visits only
Visit Information Follow-up participant information Collected at all follow-up visits
Vital Signs Vital Signs Collected at all visits