A Study to Evaluate Caregiver Connections via Technology for Patients with Alzheimer's and Other Types of Dementia

Overview

Información sobre este estudio

The purpose of this study is to optimize profile questionnaire and matching algorithm developed in Phase I and implement in final website design, and to determine if algorithmically matched participants have statistically significant increase in match satisfaction and self-reported sense of resiliency and quality of life over randomly matched caregivers.

Elegibilidad para la participación

Los requisitos de elegibilidad de los participantes incluyen la edad, el sexo, el tipo y el estadio de la enfermedad, y los problemas de salud o tratamientos previos. Las pautas difieren de un estudio a otro e identifican quiénes pueden o no pueden participar. No hay garantía de que cada persona elegible que desee participar en un ensayo se inscribirá. Comunícate con el equipo del estudio para analizar la elegibilidad del estudio y la posible participación.

Inclusion Criteria:

  • The participant must have a family member that has been diagnosed with one of the following forms of dementia:
    • Parkinson’s/Lewy body dementia;
    • Any frontotemporal lobar degeneration dementia; or
    • Alzheimer’s dementia.
  • The participant must identify as a care partner or caregiver who has contact with their loved one with dementia, in person or by phone, and provides social/emotional support and full or partial assistance with daily activities at least 3 days per week.
  • The participant must have been caring for their loved one with dementia for at least 3 months. 
  • All participants must have access to a computer and be able to use the internet.
  • All participants must be English speaking.
  • All participants must agree to participate in the 15-month study, which includes completing questionnaires, brief “virtual” interactions with the study coordinator quarterly, and actively interacting with the website and potential matches.
  • All participants must agree to follow-up contact throughout the duration of the study, which is anticipated to last 3 years.

Exclusion Criteria: 

  • Care Partner’s loved one does not have a confirmed diagnosis of dementia.
  • Care Partner is unable to provide consent.
  • Care Partner was or has been in that role for less than 3 months.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 2/15/23. Questions regarding updates should be directed to the study team contact.

Sedes participantes de Mayo Clinic

Los estatus de los estudios cambian con frecuencia. Comunícate con el equipo del estudio para obtener la información más actualizada acerca de la posibilidad de participar.

Sede de Mayo Clinic Estatus Contacto

Rochester, Minn.

Investigador principal de Mayo Clinic

Julie Fields, Ph.D., L.P.

Abierto para la inscripción

Contact information:

Leah Forsberg Ph.D., M.S.

(507) 293-9577

connect2caregivers@mayo.edu

More information

Publicaciones

Publications are currently not available
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CLS-20544037

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