Megan A. Allyse, Ph.D.

The purpose of this study is to understand how women of color from diverse racial and ethnic backgrounds conceptualize their current and lifetime risk for breast cancer (BC) and to identify which risk factors most resonate with perceptions of BC risk.

The purpose of this study is to elicit clinicians’ and scientists’ views, ethical concerns, clinical aspirations and governance needs regarding prenatal gene editing technologies. 

This is an interview study to understand the views of people with the lived experience of 10 different genetic conditions on gene modification therapies, and specifically on prenatal gene editing. Prenatal gene editing is not happening now, but it is possible that prenatal gene editing will be available in the next few years, at least in a research setting, and we want to know your thoughts about the direction this technology is going. We to hope speak with many different stakeholders (patients and their families, clinicians, scientists) with diverse perspectives to understand values and priorities for prenatal gene editing, including whether and how to make this technology available.

The purpose of this study is to examine the experiences of women and their partner seeking reproductive endocrinology and infertility (REI) care during the COVID-19 outbreak.

The purpose of this research study is to understand the views and experiences of Non-Hispanic Black women with a diagnosis or who support a family member with breast or ovarian cancer. We also want to know participant thoughts on genetic testing for cancer risk and research participation.

This is a qualitative interview study. Study participation involved talking on the phone or videoconference (e.g., Zoom) for about 1 - 1 1/2 hours with a researcher.

The purpose of this research study is to understand the views and experiences of African American women with a diagnosis or who support a family member with breast or ovarian cancer. We also want to know participant thoughts on genetic testing for cancer risk.

This is a qualitative interview study. Study participation involves talking on the phone or videoconference (e.g., Zoom) for about 1 hour with a researcher.

The purpose of this study is to assess the experience of low income pregnant women at an inner-city health system with seeking and receiving care. 

Significant disparities in health care and birth outcomes are seen in the US during normal times. During COVID-19, limited access to health care resources, social distancing and stay at home orders, and shortages of food and other necessities may exacerbate these disparities. 

The purpose of this study is to explore the experiences of patients at the Community Health Services, Inc. Clinic in Rochester, MN who are pregnant or are caring for an infant by understanding what it is like to be pregnant and plans to care for yourself and the baby.

The purpose of this study is for The Center for Individualized Medicine (CIM) at Mayo Clinic to discover and translate genomic and molecular science into personalized medical applications

The study seeks to understand the impacts the COVID pandemic has brought to the communities, how communities are coping and how we can build resilience to prepare future health crises.

The study seeks to understand the impacts the COVID pandemic has brought to the communities, how communities are coping and how we can build resilience to prepare for future health crises.

The purpose of this research is to identify appropriate strategies to address complex care decision-making and the needs of Spanish-speaking patients with limited English proficiency, as well as their caregivers, family members, and community members.

The purpose of this study is to survey individuals and families on their experience of receiving a diagnosis of a sex chromosome abnormality and any follow-up services or support they received, and to solicit information on suggested best practices for the return of a diagnosis and subsequent support services in clinical and social care.

The purpose of this study is:

• To assess how women who have undergone treatment for UF view the experience, whether they prioritize experimental approaches to remedy any impacts on their fertility, and the psychosocial and socio-economic factors most important to them in considering the preservation or restoration of fertility.
• To assess the potential perceptions or experiences of women of African descent compared with women of other ethnic backgrounds of disparities in the symptoms and how treatment options for UF may impact willingness or ability to pursue approaches to fertility maintenance and restoration.

The purpose of this study is to identify the range of stakeholders' viewpoints, including values, preferences and concerns, relating to complex genetic information generated prenatally and to examine differences in values between professional/personal groups.

The purpose of this study is to explore the experiences of consumers in receiving results on genetic risk of malignant hyperthermia and pseudocholinesterase deficiency via an online direct-to-consumer portal that includes robust consumer education and guidance on physician consultation, and to explore the experiences of consumers of MCGG in purchasing and using the product.

This study is designed to explore the experiences of individuals growing up with a genetic diagnosis of SCAs and their families.