Clinical Trials

The purpose of this study is to use a validated survey tool to find health related quality of life scores for patients with vascular malformations or vascular malformation-overgrowth syndromes, to assess for potential differences in health related quality of life between patients with vascular malformation versus vascular malformation-overgrowth syndromes, as well as stratify across other variables including demographics and disease severity, and to compare health related quality of life in our patient population to that of the general population as well as to other well-studied chronic medical conditions.

The purpose of this study is to develop a resource (bank) of biospecimens and data collected from individuals with a vascular tumor or malformation to facilitate discovery and development of novel biomarkers for diagnosis and treatment of disease, better elucidate etiologic factors relating to vascular anomalies, and novel targeted therapeutic strategies for vascular anomalies.