Clinical Trials

Overview

About this study

The purpose of this study is to use a validated survey tool to find health related quality of life scores for patients with vascular malformations or vascular malformation-overgrowth syndromes, to assess for potential differences in health related quality of life between patients with vascular malformation versus vascular malformation-overgrowth syndromes, as well as stratify across other variables including demographics and disease severity, and to compare health related quality of life in our patient population to that of the general population as well as to other well-studied chronic medical conditions.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Participating Mayo Clinic locations

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