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Childhood ADPKD Database Study

Overview

About this study

The purpose of this study is to expand the currently limited knowledge about Autosomal Dominant Polycystic Kidney Diseases (ADPKD) by creating a registry of clinical information about this set of diseases.  

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Diagnosed with ADPKD prior to 18 years of age.
  • Demonstration of ADPKD by clinical information, imaging studies, biopsy, autopsy, or genetic testing.

Exclusion Criteria:

  • Patients with autosomal recessive polycystic kidney disease (ARPKD), urinary tract malformations or major congenital anomalies of other systems suggesting a diagnosis other than recessive hepato-renal fibrocystic diseases.   

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Christian Hanna, M.D., M.S.

Open for enrollment

Contact information:

Christian Hanna M.D., M.S.

(507) 266-5109

Hanna.Christian@mayo.edu

More information

Publications

Publications are currently not available

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CLS-20550724

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