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Engaging Adolescents in Decisions About Return of Genomic Research Results

Overview

About this study

The purpose of this study is to compare choices about learning genomic results, decision stability, and decisional conflict between assenting and consenting adolescents.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Assenting adolescents (13-17 years).
  • Consenting adolescents (18-21 years).
  • Parent / legal guardian of assenting or  consenting adolescent.
  • Ability to participate in remote study visits, if applicable.

Exclusion Criteria:

  • Individuals who do not meet inclusion criteria.
  • Those who do not communicate in English.
  • Individuals with developmental disabilities that interfere with their ability to make independent decisions.
  • Participants whose permanent address is more than 100 miles from Cincinnati Children's Hospital Medical Center.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 5/11/23. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Michelle McGowan, Ph.D.

Open for enrollment

Contact information:

Michelle McGowan Ph.D.

(507) 293-7787

McGowan.Michelle2@mayo.edu

More information

Publications

Publications are currently not available

More about research at Mayo Clinic

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CLS-20547260

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