A Study to Analyze Phenotype-Genotype Vascular Anomalies

Overview

About this study

The purpose of this study is to develop a better understanding of the cause and natural history of vascular anomalies, discrepancies of growth, and related syndromes.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

Individual of any age from infant to adult.
Able and willing to provide consent/assent
Diagnosed with a vascular anomaly or discrepancy of growth.

Exclusion Criteria:

Subjects will continue to be followed for this study until any of the following events occur:

Withdrawal of consent.
Documentation of dissent after enrollment.
Refusal to re-consent after turning 18 years old.
Lost to follow up.
Physician discretion.

Eligibility last updated 8/1/22. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Megha Tollefson, M.D.	Open for enrollment	Contact information: Alison Gilbertson B.S. Langer.Alison@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Megha Tollefson, M.D.

Open for enrollment

Contact information:

Alison Gilbertson B.S.

Langer.Alison@mayo.edu

More information

Publications

Publications are currently not available

Clinical Trials