Inclusion Criteria:

• A paediatric patient who has received a diagnosis of CPVT, and has experienced a cardiac arrest/appropriate ICD shock:
• A diagnosis of CPVT is typically made in the presence of a structurally normal heart, normal QTc interval on resting ECG, and a clinical phenotype of exertional or emotional syncope or cardiac arrest and at least one of the following:
  • Unexplained exercise or catecholamine-induced bidirectional VT or polymorphic ventricular premature beats or VT;
  • Identification of a heterozygous pathogenic/likely pathogenic variant or biallelic pathogenic/likely pathogenic variants in a gene known to be associated with CPVT.
• Aged 5-19 years old inclusive at time of consent.
• A patient that is already enrolled in the Paediatric CPVT Registry.
• Fluent in English (all questionnaires are written in English), or recruited at a site where the questionnaires are available in an appropriate language.

Exclusion Criteria:

• Parents or patients unable/unwilling to provide informed consent or assent, respectively.
• Significant co-morbid condition not directly related to a complication of CPVT.
• Individuals (including parents) who are not fluent in written/spoken English.
• Intellectual disability or neurodevelopmental disabilities that would interfere with the patient’s ability to assent and complete questionnaires.
• Non-CPVT related significant life events within the preceding 6 months (e.g., serious illness [personal or family], death of family or friends, divorce/separation).

Eligibility last updated 6/27/22. Questions regarding updates should be directed to the study team contact.